After a conversation with my colleague and neighbor, I decided to do a bit of research on palliative care. If you are hanging out in the medical reform circles, you hear a lot of buzz words like patient-centered home, reimbursement rates, etc. After hearing enough of this stuff, it is nice to hear a "system" that is already in place, called palliative care, that provides a good model.
Ask your medical professionals about the availability of palliative care for yourself or your loved ones. If you are developing a care-tech product, look at incorporating it use into palliative care. Where does it fit? How will it enhance quality of life or positively influence the course of illness?
Here is some info from the CSU Institute for Palliative Care website:
Palliative (pronounced PAL-lee-uh-tiv) care is health care that focuses on improving quality of life and comfort for patients with serious or chronic illness. It focuses on relieving the pain and physical symptoms as well as the emotional stress, fear, frustration and spiritual concerns that major health problems can create for those with serious illness(es) and their families. Palliative care is provided by team of professionals, typically including doctors, nurses, social workers and spiritual counselors.
Palliative care can be received at the same time as other treatment and has been proven to help those with serious illness live longer, have a more rewarding life and to ease the stress on those who care for them. It is available for patients of all ages who are at any stage in their illness.
· Provides relief from pain and other distressing symptoms.
· Enhances quality of life, and may also positively influence the course of illness.
· Integrates the psychological and spiritual aspects of patient care.
· Uses an interdisciplinary team approach to address the needs of patients and their families. This typically includes a physician, nurse, social worker, pharmacist, chaplain and others as needed.
· Offers a support system to help patients live as actively as possible throughout the course of an illness.
· Offers a support system to help loved ones cope with stress during the patients' illness and in their own bereavement.
· Is applicable early in the course of illness, in conjunction with other therapies that are intended to cure an illness or prolong life, such as chemotherapy, radiation therapy, surgical procedures, etc.
· Affirms life and regards dying as a normal process.
I highly recommend signing up for the free caregivers handbook available from the CSU Institute for Palliative Care. This is an electronic version of an excellent San Diego County caregiver resource. To get the e-book, you must subscribe to the Institute's consumer quarterly newsletter which keeps you updated on the latest information about easing suffering and improving quality of life for those with illness. Click Newsletter cons (consumer) in the subscription screen or add any of the other items if you want the professional information.